A MATCH has been found for a Barry baby urgently needing a bone marrow transplant to combat a “one-in-a-million” medical disorder.

Reign Miller-Hardy was diagnosed with haemophagocytic lymphohistiocytosis (HLH) and X-linked lymphoproliferative disorder (XLP1) on August 7 this year.

His family appealed for people to join the bone marrow register after 10-month old Reign was diagnosed with the immune disorder which affects one in every one-million boys.

His parents, Ashleigh Miller, 32, and Scott Hardy, 29, have been taking turns to visit him in the Great North Children’s Hospital, in Newcastle upon Tyne, due to covid-19 restrictions.


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One-year-old Reign has been undergoing intense chemotherapy to suppress the HLH XLP1 symptoms.

Reign’s auntie, Lisa-marie Evans said: “We had confirmation that reign had a 9/10 match on Friday (October 2) only two days after his birthday - what a perfect birthday present.

“The transplant is scheduled for November 16 after a week of intense chemo.

“The doctors have given Reign a 75 to 85 per cent survival rate.

“We as a family are obviously so happy, but it comes with caution and a lot of uncertainty.

“We know it's going to be a long worrying battle for Reign from this point, but we have every faith that our strong boy will continue fighting and get through this.”

She added: “We want to thank everyone who has signed up to the stem cell register, blood donations and shared and supported Reign through his journey so far.

“I would also like to express the importance of people who are eligible to donate blood or stem cell to still do so.

“We as a family are so lucky that Reign has found his miracle match, but there are still so many people who are still waiting for that all important donor.

“We always wanted to raise awareness and that won't stop now.

“I plan on continuing campaigning and staying in touch with the Welsh Blood Service; Anthony Nolan; and Dkms to help in any way possible to help many more.”

A simple mouth swab enables people to join the bone marrow register.

For details, visit www.wbs.wales/forReign; DKMS (age 17 to 55) https://www.dkms.org.uk/en/register-now; and Anthony Nolan (age 16 to 30) on https://www.anthonynolan.org/8-ways-you-could-save-life/donate-your-stem-cells?utm_campaign=Appeal&utm_content=Register4Reign